Okay, so here's the main scoop. Many of you fine folks may not be aware of this: I, along with many other wonderful and important people, have a bizarre genetic condition that is also ridiculously rare, and therefore hard to diagnose/treat/know what the heck to do about it at all. It's called PCD, which stands for Primary Ciliary Dyskinesia. That basically means that all of the billions and billions (think Carl Sagan) of little teeny sub-cellular sized hairlike thingies that line the lungs, sinuses, ears, and other places do not work. They are supposed to wave in a synchronized fashion to the tune of many times per second. It's a beautiful thing. They look like wheat fields in the wind, only on high speed. At least when they work.
When they don't, all kinds of havoc ensues. Mainly snot. In all seriousness, it's not an imminently fatal or life-crushing disease, but it is very not fun and it CAN have some very serious effects, particularly for the lungs. As in many older patients are getting lung transplants, and that's not a good thing. Very little is known about it thus far. I encourage all of you, I mean ALL of you, to please peruse the PCD Foundation website link to the right just there. Please.
This is all a prelude to me asking you for all your money. I will be hosting a walkathon for the PCDF in October, and I'd really like everybody who can to participate, either by becoming a walker and collecting pledges, or by pledging money to another walker. I have a lofty goal of raising at least $4,000.00. I can't do it without you all! More details on the walk will be posted here as they come up.
I have also provided links to my friend Wendy's art site and blog.
4 comments:
(I just made another post I had to delete because I spelled your name wrong K! I have no excuse!)
It's true, I have enough spleens to make a mint on the blackmarket should there ever become a market for transplanted spleens :D
And I was thinking, as well as donating a dollar for every print sold on my website, I could do a painting (anyone got any ideas on a subject?) and send that to you Kathryn, to auction on ebay (as I can't do it properly from New Zealand) and all the proceeds can go towards PCDF :) All's I need is a good subject!
You're so smart, Wendy! I think I should send you a photo of a horned lizard to paint. Neato!
K
K! :) I've tried emailling you about the painting idea but my emails keep coming back...did you get any of them? LOL!
Post a Comment